Soooo, my latest round of medical tests did not exactly go as planned. What was scheduled to be a lumbar puncture last Monday, turned into 2 punctures ( a total of 10 war wounds!) and a visit back to the ER on Wednesday for the absolute worst headache EVER. I really appreciated how everyone kept saying "Well, since you are just here for a headache..." They were totally clueless.
The good news was no signs of cancer or MS from the spinal fluid that was collected and tested. Now we wait for my rheumatology appointment next week and hope we get answers and a treatment plan then.